Recently I had the good fortune to meet and enjoy a cup of coffee in the company of a fabulously inspirational woman, Casey Wohl, The Getaway Girl. Eventually our conversation turned to my condition, and she asked a question I rarely hear, “Are you in pain now?” I attempted to explain the most dominant type of pain I experience. Feeling bruised, tender to the touch, and frozen in your core, if that makes any sense. I could see her concern for my well-being in her eyes, so I reassured her I was fine.
Believe it or not this was the first time anyone outside of my medical team ever asked me this question. I used to explain that I felt like what I could imagine a Monet painting would feel like. When I see myself in a mirror from far away I look normal and healthy, a masterpiece. However as I approach the mirror, I start to see the wear of the pain in my eyes, on my face and body, making my picture perfect appearance look and feel like goop on canvas.
The pain I experience has many dimensions and mutates with no warning, changing daily, weekly, monthly, or not at all for a time, in varying levels but always present. Even though I feel tearing, pulling, aching, burning, and stretching in my muscles, my doctors have assured me that I am not damaging my muscles. I keep on moving, ignoring what other people might pay more attention to.
I care for my pain by pacing myself, exercising, and eating right. I prepare for it by carrying “tools” that help me deal with my pain, like my TENS and DaVinci self massage tool. I try not to leave home more than 3 days a week, and make sure I don’t stay out for more than 3-4 hours at a time. If neglected for too long my pain will flare up, so it is best to get home, where if necessary, I have access to my heavy-duty pain fighters, such as my sauna blanket, and bath tub. Listening to what my body is no longer an option.
I believe the key to living with any dis-ease is being able to look beyond the illness. Accept it for what it is, then resolve not to let it get in your way of enjoying your wonderful life. We have to keep on moving on, that’s just the way it is.
How do you live beyond your dis-ease?
As always, please feel free to share your thoughts and experiences. I hope that by sharing my experiences you find strength, hope, and solutions when you make your commitment to live beyond your illness.
Carmen M. Perez, Travel Counselor
Your Florida Travel Expert and Gal Pal Bounce Back Getaways Specialist
Let’s start planning — You dream it, I plan it, you deserve it.
Visit My Website: www.GalPalBounceBackGetaways.com
Telephone: (407) 900-9258 E-mail: Carmen@CmpTravelCounselor.com